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COPING STRATEGIES
AGITATION AND SUNDOWNING
At certain stages of the disease, Alzheimer's sufferers may show signs of agitation, especially towards evening (sundowning). Increased agitation late in the day is a matter of fatigue, not a response to changing light. People with Alzheimer's Disease have to work hard just to perceive the environment,
understand it, and respond to people in it. Any neurological disease causes severe fatigue.
Unfortunately, late in the day is a time of fatigue for carers as well. This is also often a busy time when a carer would normally have many other tasks to perform - organise the family and dinner. If sundowning is a problem, organisation of meals etc may have to be done earlier in the day. Rest periods, organisation and routine are perhaps the most useful responses to this phenomenon for the welfare of both the person and the carer.
As with most disturbing behaviours, this may be a phase of the disease, but there are other factors that can contribute to the problem including
- inability to perform a task
- overtiredness and/or sleep deprivation
- pain, fever, illness or constipation
- side effects of medications
- impaired vision or hearing leading to misinterpretation of sights and sounds or hallucinations
- sensory overload - too much noise and activity
- unfamiliar people, places or sounds leading to feelings of insecurity
- change in routine
- being asked to respond to too many questions or instructions at once
- response to stress or irritability of others or by arguments between others
- being scolded or contradicted
- feeling insulted by tone and manner of others or by being treated like a child.
Try
- a medical check-up to eliminate possible medical problems
- having doctor adjust medications
- having vision and hearing checked
- analgesic for pain where this is a problem - consult the doctor first
- checking for trigger factors which increase agitation and trying to avoid them
- sitting and quietly talking to the person
- alternating periods of activity with quiet times, perhaps in a room away from all distractions
- keeping to routine as much as possible
- assisting the person step by step through complex tasks to reduce frustration and failure
- keeping surroundings simple, uncluttered, quiet and calm
- removing the person from any stressful situations
- distraction with favourite food or activity or encouraging the person to tell a favourite story
- speaking in a calm, reassuring voice
- music
- massage
Avoid
- allowing access to objects which could be used as weapons or any dangerous items (knives, for example)
- asking questions that rely on memory
- trying to rush the person
- discussing in advance any changes planned
- trying to reason or argue with the person - realize that the patient does not see and hear what we do
- loud noisy places, crowds, and places with lots of sights and sounds
- expressing your own frustration and/or irritation.
- giving too many choices or forcing the person into making too many decisions
- too much caffeine or alcohol.
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