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COPING STRATEGIES
LONG-TERM PLANNING FOR CARER HEALTH

Don't try to carry all the burden yourself. It is okay to ask for help. Studies indicate that many carers suffer such a degree of distress that they could be considered to have a formal psychiatric illness. It is very important that carers consider their own well-being as well as that of the person in their care.

Consider respite care if necessary.

Plan ahead.
Try to get your loved one to indicate their future preferences for health care and for decision-making when they are no longer capable of making decisions for themselves. Have them draft an advanced directive which nominates you or someone else as a substitute decision-maker with full and enduring power of attorney.

The time will come when you may need more assistance, and you may eventually need full-time alternative care. Many services for people with dementia have waiting lists. Thinking ahead allows you to be prepared and gives you more time to fully investigate possibilities and choices when the time for full-time care arrives.

Take time for yourself.
It is important for carers to schedule time for themselves and their interests. Hang on to hobbies that renew your mental or physical strength. Keep some hobbies. You may have to give up some activities as you take on the role of caregiver, but try to factor in some time for yourself.

Try not to place too high expectations on yourself.
Remember that stress is not caused by situations, but by your reaction to them. Be aware of your reactions and walk away from situations where necessary to regain composure where it is safe to do so.

Talk to others who understand.
Consider joining an organized support group for caregivers and/or seek support among your family and friends. Because of earlier diagnosis of dementia, some communities also have support groups for people with dementia.

Ask others for assistance.
When you become immersed in caregiving, it may be difficult to keep a clear perspective. Ask other family members or health-care providers to help you evaluate when you need more help. Give yourself a break. Look into respite care. After a few hours to yourself, you can return to caregiving re-energized.

An excellent article on identifying signs of care-giver stress can be found at alzheimer.com.

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